Monday, January 26, 2009

We got bumped to the top of the waiting list!!!!!

I called up to check on Boo's status today and found out that because of his extreme challenges, he was put on the top of the list. He's next in line for a spot! This is truly a miracle for us! There is still no guarantee of how long we'll have to wait but at least we know he's next.
The person who runs the program told me that Dr. S really stressed the importance of Boo getting into this program. I am so grateful for our Dr. He is truly amazing!

Now onto the not so good news....Boo had his appt with Dr. S last week. It seems that he may be suffering a side effect from one of his meds so we need to run some bloodwork and make sure it's not affecting his endocrine system. If the test comes back positive, we will have to stop the Risperdal immediately. This could bring on some more intense behavior.
In the meantime, we cannot try any other medication so we're in a bit of a holding pattern.

This particular appt. also gave Dr. S more insight into Boo. He spent over an hour with us and much of that time was playing or talking to Boo. He reassured me that much of Boo's behaviors are from his Autism. Unfortunately, there are other behaviors that could be the beginning signs of something even more serious.

There are days when Boo's behavior is so out of control that I seriously contemplate him needing hospitalization and then there are days like today that are challenging but overall not too bad.

Overall, I have faith that God will light a path for us. I pray that Boo can get into this program soon and that the logistics of how it will all work will fall into place.

"Faith is being sure if what we hope for and certain of what we do not see."~Hebrews 11:1


1 comment:

rachel said...

i am so happy for you that you are at the top.
we will continue to pray for you.

love, rachel and baby emilie