Saturday, December 25, 2010

So this is Christmas.....

I've neglected my blog. I'll admit it. I'm lame at blogging ;) I have so many friends who are expert bloggers. They amaze me with their eloquent words and beautiful pictures.
I aspire to be more like them but alas I'm not.
I have been working hard on Stop FASD Today! The website is coming along. I really need a good web designer to help me so if anyone reading this knows of one that would donate their time/services, please let me know :)

I'm thinking we will be launching the new site in the next few months. It's taking longer than I anticipated but I know it will be worth the wait.

Bo and Boo are doing well. They are busy with school. Boo now knows ALL of his letters!!!! He amazes me every day with his intelligence.

I'm still working on juggling all of Bo and Boo's services but things seem to finally be falling into a nice rhythm.

I can't believe we are in the last week of 2010! Where did this year go? Where did the last 18 years go for that matter? We will be celebrating our 18th wedding anniversary next week and I honestly can remember our wedding day like it was yesterday!

It's been quite a ride but I think the best is yet to come ;)

Merry Christmas to everyone and a very Happy and Blessed New year!!!!

Wednesday, September 29, 2010

And I'm back.................

Well that last few months have been a bit of a roller coaster ride. I have all sorts of health issues and unfortunately my body decided to get my attention last month by sending me to the ER. I'll spare you the details but what started out as the possibility of Crohns disease ended at the possibility of endometrial cancer. Thankfully I don't have the latter. I had to have a biopsy last week and the results came back benign. I can't tell you how SCARY these past few weeks have been wondering and waiting. It has also been especially crazy because we started back up with school! The boys both have IEP's and evaluations going on. Boo started Speech, OT and academic tutoring and Bo is back with his VI teacher twice a week. I've been running around like a chicken with no head trying to get things into somewhat of a routine and in the midst of all this has been several Dr's appts for me and Boo. Needless to say, I haven't had time to tend to this blog OR to StopFASt. The good news is that now that things are somewhat under control, I'm ready to tackle my project again!
I don't have all the answers to my health issues and I still need to sort a few things out to get to the root cause of things but I am taking it one day at a time. I'm eating healthier, eating less and losing weight! I'm working on changing old habits (bye bye chocolate!) and incorporating new ones (hello veggies!). It's not easy but it's all part of the process of healing!
Until next time........

Wednesday, September 1, 2010

Life

To say things have been busy would be an understatement. Life has once again taken the form of a tornado. There are so many things going on and no time to truly stop and update or even think for that matter. I'm going to summarize using bullet points because while I'm determined to give an update, I'm literally falling asleep as I type.

*Stop FASt is in the works but is moving slow. I am still in need of a graphic artist so if anyone knows of one willing to do a charity project, please let me know :)

*We started school and haven't had a moment to breathe. There are lots of services to set up and the kids all have different interests, etc so it will be a busy year!

*I've had all sorts of health issues including an ER trip and a few specialists. I've never had the best "stomach" and right now my body is telling me to pay attention to it....so I am...

I could elaborate for hours on all three of those points but will have to save it for another day.

Until next time.....

Thursday, August 12, 2010

Quick update...

Stop FASt is coming along although there may be a name change;) I've had a rough couple of weeks with some illnesses but hopefully will soon be on the mend and back in business.
This is a slow process and patience is the key but I know that perseverance will pay off in the end. UCLA has been very gracious and is working hard to make my vision a reality.

Lots more to update...stay tuned!

Friday, July 16, 2010

Stop FASt, give a dollar! (preview)

As I've mentioned before, there is something huge in the works in my life. God has put it on my heart and made it very known to me what I need to do. With the help of a major university, we will be launching a big FASD awareness campaign!!!! This is still in the VERY early stages but I've been given the green light by this university to go ahead with my plan. There are so many details to work out. I have no business background, no marketing background, no public relations background but I somehow will be tackling all of these things and more as I embark on this new chapter of my life. I keep saying "my" but it really is about "us". It will include my family, friends, strangers, my blogging friends/acquaintances and anyone else that is passionate about FASD awareness.
Our vision has several goals.

1. To bring awareness of FASD to every person in the US and
potentially worldwide.
2. To educate Social Services, Physicians (particularly peds and dev. peds),
hospitals, children’s clinics, DCFS, WIC offices, Social workers,
Educators, Administrators, LAW ENFORCEMENT, etc on the
REALITY of FASD. (ie: What does it look like? Treatment?
Prevention? Prevalence?)
3. To raise enough awareness that would generate funds for an FASD
research/treatment center at UCLA.
4. To bring together all grassroots operations around the country who
have the same vision of getting awareness out into their communities.
5. Uniting the fight against FASD with the simple idea that anyone can
help end FASD by simply donating a $1.

Now I realize someone living in a different state than Ca. might not see the benefit of donating money to opening a research and assessment center so far away but these centers are so desperately needed everywhere. There are some great hospitals and universities around the country right now that do offer diagnosis of FASD's but they are few and far between. The need is great and the time is now.

I do not want to see my son fall through the cracks anymore. I do not want my son to become another statistic. I do not want my friends children to be a statistic either. 80% of inmates NATIONWIDE have been through the foster care system at one point in their lives. Up to 70% of foster children have been affected by alcohol. These stats are frightening. Alcohol exposure in utero leads to permanent brain damage. Brain damage that includes but is not limited to: loss of executive brain function, poor impulse control, hyperactivity, poor memory, lower IQ, learning disabilities, stunted emotional growth (fewer than 10% of people with FASD are able to achieve success with working and living independently).

So where do we go from here? Well, I'm praying that God will pave a clear path for me and honestly, I'm doing this one step at a time through Him.

If you have a child with FASD and are reading this, please let me know if you would like to help (even praying is GREATLY appreciated). Right now we are in the planning and development stage and I am unclear on a lot of things. I am very excited to be doing this and will share at a later time how it all came to be in the first place.

That's all for now since it's nearly midnight and I still need to clean up the house a bit before I hit the sack. Until next time.......

Monday, July 12, 2010

It's like trying to wash your windows during a hurricane.....

As I said in my last post, I'm working on cleaning/organizing/simplifying. It's a process but it's been consistent. I'm proud of the work I've accomplished so far because I'm seeing results and am so happy with the changes I'm making. However, the title of this post says it all.
While I'm working on cleaning out a cupboard, Boo is raging over something in another room, making a huge mess. He needs one on one time nearly constantly. He needs reminders, redirection and someone who knows how to "change the channel" in his brain when he gets stuck on something.
I'm typing on my laptop that has several missing keys because Boo was mad and ripped them off the other day. This was after he raged in his own room and dumped every toy out of his bins/closet/etc. It's tiresome to constantly deal with unreasonable little brains. It's exhausting.
So I have to give myself grace and realize that Rome wasn't built in a day. The house will get cleaned and organized but it will get messy and disorganized again.
Baby steps. Just like Boo learning to control his rage and Bo learning braille. Two steps forward, one step back.
Until next time.....

Monday, July 5, 2010

Busy Busy Busy.....

So much going on lately! Aside from the big "thing" that I'm working on and talked about in a previous post (which I promise will be revealed soon!), I've been trying to get our house in order. It's summer and I'd like for us to enjoy some down time but I also know that Sept. is right around the corner so the time for organizing, cleaning out and reconfiguring things is now. I'm also in the process of figuring out curriculum for next year for the kids. One of the benefits of homeschooling is the freedom to choose curriculum based on a child's needs. This is great but of course it takes tons of time hunting down that perfect curriculum for each individual child.

I was able to score some great supplementary materials last week at a garage sale. I found a finger puppet theater with puppets, a felt board with felt people/animals, some super big Magic School Bus books (floor size), some foam puzzles, a Lakeshore Teacher planner (brand new), an elementary art curriculum book, a large pocket chart with stacks of words to make sentences, a stack of Brain Quest cards, a stack of dinosaur books for Boo (he picked them all out and they even threw in a large dinosaur time line poster for free!), and a huge Sterilite container full of Play Mobile toys!!! I spent $20 on all of the above and my car was loaded up with great treasures! Now I have to try to organize it all so it's easily accessible and doesn't add to the clutter!

But of course like I said before, we're trying to take some time to relax too and refuel so we're ready to plunge back into school come Sept. with a refreshed mind and attitude.

We're going to head to the beach one day this week and Bo starts Judo too so we'll be having some fun adventures! Until next time.......